Trismus Pseudocamptodactyly Syndrome

We are actively searching for patients with this condition, and any pediatric patients dealing with craniofacial ankylosis between the skull, maxilla, temporomandibular joint, and the mandible.  Please contact us for more information about possible treatments. 

For more information, see:
GARD - Genetic and Rare Diseases Information Center: Trismus-pseudocamptodactyly syndrome
NORD - National Organization for Rare Disorders: Trismus-Pseudocamptodactyly Syndrome

Organizations supporting this condition:

• myFace
  
• Ameriface 
• FACES: The National Craniofacial Association 
• Let's Face It  (This organization does not appear to be active any longer. However the information and resources may be helpful. )
  
• Reach: The Association for Children with Hand or Arm Deficiency - UK 
• The Arthrogryposis Group (UK)
  
• AboutFace International (Canada)